Author Rae Z. Ryans and AimeeKay from AimeeKay’s Reviews are co-hosting Readers for Retts Awareness! The event was created to help spread the word about Rett’s Syndrome and give people a chance to meet the girls suffering from this awful disease and their families. (If you want to find out more about Retts itself please feel free to follow this link and see what it’s about. To actually meet a sufferer of Retts click here.)
Now onto the details of the event:
Currently they are seeking authors, bloggers, Rett families, and small businesses to help us spread the word about Rett Syndrome. They are looking for people interested in opportunities to host families, hold interviews, and spread the word about this disease affecting families and their daughters. Also Rett’s girls(or their families) will be paired with sponsors who will offer giveaways on their behalf.
Some quick facts about Rett Syndrome:
—Debilitating neurological (movement) disorder that predominantly affects females. (Boys generally die from it because of the genetics involved)
—Baby girls are born “normal” but begin to lose acquired skills between the ages of 1-3 years old.
—Caused by a single gene mutation that leads to underproduction of an important brain protein.
—The leading genetic cause of severe impairment in girls – most cannot speak, walk or use their hands.
—Despite their physical disabilities, girls with Rett Syndrome are believed to be functioning mentally at a much higher level than previously thought.
—As prevalent as Cystic Fibrosis, ALS and Huntington’s.
—Another little girl is born with Rett Syndrome every 90 minutes.
—Rett Syndrome is a potentially REVERSIBLE disorder. Research has proven once protein levels are back to normal levels, symptoms subside.
The awareness party will be held on Facebook,so yes you will need a Facebook account to participate as a sponsor for the event. However if you don’t have one, but still wish to help spread the word, you can still help.
Time and date: The event will start October 3rd @ 10 a.m. CDT. October was chosen since it is National Rett Awareness Month.
If you are interested in participating or spreading the word click on the link and fill out the form below.
I also have buttons to share if you want to set up your own post to help promote this event. Please just email AimeeKay a link to the post once it is live. Also they are asking if you do have a Facebook account/page to change your profile pic to one of the buttons to help spread the word.
Banners (FB compatible)
If you have any questions feel free to email AimeeKay @ firstname.lastname@example.org.